March is Colon Cancer Awareness Month
My friend Erika from Snyder County once again graces the cover of the Colondar.
On Saturday, March 3rd, colon cancer survivor Vince Papale will be speaking at Geisinger.
14 years ago
Showing posts with label Colon Club. Show all posts
Showing posts with label Colon Club. Show all posts
Wednesday, February 29, 2012
My friend Erika from Snyder County once again graces the cover of the Colondar.
On Saturday, March 3rd, colon cancer survivor Vince Papale will be speaking at Geisinger.
Friday, November 28, 2008
Happy 5th Anniversary, Colondar!!!!!
As October was being painted pink for breast cancer awareness the 5th anniversary issue of the Colondar was published. The Colondar and the Colon Club was started by Molly McMaster who was diagnosed with colon cancer on her 23rd birthday. The Colondar and Colon Club are used to bring awareness that anyone can be diagnosed with colon cancer and it is not an age related issue.
For the 5th straight year, Erika Kratzer of Snyder County in Pennsylvania graces the cover. Erika was diagnosed in 2000 at the age of 22. I got to meet Erika and her family through a local newspaper article about the Colondar. Being diagnosed myself at age 36 in 2002, I had a side effect from chemo that made my eyes water. November 29th, 2002 was the day I first had symptoms of this disease.
Through bringing the Colossal Colon to the Susquehanna Valley in 2005, Erika's mother Janet Bilger and I co-chair the Central Susquehanna Valley Colon Cancer Task Force. In 2008, our task force's efforts were realized by signing HB1155 (Colon Cancer Screening) into law in Pennsylvania.
Here is a toast to the Colon Club and the Colondar. May Erika grace the cover for another 10 years.
Here is a picture of Erika's mother with Governor Edward Rendell at the signing of HB1155.
Friday, June 6, 2008
Remembering Becca
A person I met from the Colon Club passed away from colon cancer at 1:30 this morning. She was from Mechanicsburg, PA. She was diagnosed with StageIV colon cancer soon after she gave birth over three years ago and spent her entire time as a mother fighting colon cancer.
Here are the things Becca wanted to do before she moved on:
In no particular order......
1. I want to own my own home.
2. I want to take a trip to Greece.
3. I want to ride a mechanical bull.(No snickering please!)
4. I want to turn 40.
5. I want to take a trip to Alaska.
6. I want to watch my daughter graduate from High School.
7. I want to got back to work. I really miss my job!
8. Though highly unlikely, I would love to have another baby.
9. I want to get a new tattoo to cover the one on my ankle.
10. I want to need a haircut. I had nice hair & I miss it, damn it!
11.I want to see the look on my daughter's face the first time she sees Mickey Mouse in person. (6 weeks & counting!! I can't WAIT!)
12. I want to make sure that every one of my friends & family know exactly how much I love them... really, really love them. (Even if they happen to be a deadbeat with no job.)
13. I want to understand why I got cancer.
14. I want to live long enough to see a cure for cancer.
15. I want to watch my husband graduate from college & become a teacher.
16. I want to fly First Class.
17. I want to kiss my grand babies.
18. I want to take a helicopter into the Grand Canyon.
19. I want to take my daughter to Niagara falls & ride the Maid of the Mist one more time.
20. I want to have stupid fights with my teenage daughter 'cuz we both have PMS.
21. I want to tell my grandchildren what a pain in the ass their mother was when she was a teenager.
22. I want to send my husband on a dream golf vacation because he deserves it, damn it!
23. I want to make sure that my sister-in-law knows what a truly cool sister, Aunt, & God Mother she is.
24. "I'd like to thank the Academy..." (Sorry, had to do it!)
25. I want to make sure that Jen knows that even though she lives so far away I can feel the love & support flowin' to the lower 48!
26. I want to make sure that Tom & Paul know how much I appreciate their love & support even though I don't get over much right now 'cuz I've been feeling so crappy. (And I know how much they LOVE living in PA!)
27. Although I am deathly afraid of heights, I'd really like to ride in a hot air balloon!
28. I want to take a trip to Banff.
29. I've always thought about writing a children's book. Maybe I should just give it a try.
30. I want to see a jazz concert @ Lincoln Center.
31. I want to see Mt. Rushmore.
32. I want to read Tuesday's With Morrie because I'm probably the only person on earth who hasn't read it yet.
33. I want to read The Secret Garden, A Tree Grows In Brooklyn, & Jane Eyre to my daughter just like my mother read them to me.
34. I want to go back to LA & do all the tacky touristy crap that I didn't get to do the last 2 times that I went. Oh yes, I WILL buy a star map...
35. I want to swim in the Gulf of Mexico.
36. I want to go to the San Diego Zoo.
37. I want to learn to ride a horse.
38. I want to see San Fransisco.
39. I want to have lunch with this lady, 'cuz she ROCKS!
40. I want Ty Pennington & his crew to come & fix my mom & dad's house even they make me crazy. They deserve it.
41. I want to watch this over & over again because it's freakin' HILARIOUS! I think I've seen it 20 times & it still gets me!
42. I want to take a carriage ride through Central Park & have dinner at Tavern on the Green.
43. I want to eat sushi in Tokyo.
44. I'd like my steroids to wear off so I can got the hell to bed. I'm really rather tired!
3. I want to ride a mechanical bull.(No snickering please!)
4. I want to turn 40.
5. I want to take a trip to Alaska.
6. I want to watch my daughter graduate from High School.
7. I want to got back to work. I really miss my job!
8. Though highly unlikely, I would love to have another baby.
9. I want to get a new tattoo to cover the one on my ankle.
10. I want to need a haircut. I had nice hair & I miss it, damn it!
11.I want to see the look on my daughter's face the first time she sees Mickey Mouse in person. (6 weeks & counting!! I can't WAIT!)
12. I want to make sure that every one of my friends & family know exactly how much I love them... really, really love them. (Even if they happen to be a deadbeat with no job.)
13. I want to understand why I got cancer.
14. I want to live long enough to see a cure for cancer.
15. I want to watch my husband graduate from college & become a teacher.
16. I want to fly First Class.
17. I want to kiss my grand babies.
18. I want to take a helicopter into the Grand Canyon.
19. I want to take my daughter to Niagara falls & ride the Maid of the Mist one more time.
20. I want to have stupid fights with my teenage daughter 'cuz we both have PMS.
21. I want to tell my grandchildren what a pain in the ass their mother was when she was a teenager.
22. I want to send my husband on a dream golf vacation because he deserves it, damn it!
23. I want to make sure that my sister-in-law knows what a truly cool sister, Aunt, & God Mother she is.
24. "I'd like to thank the Academy..." (Sorry, had to do it!)
25. I want to make sure that Jen knows that even though she lives so far away I can feel the love & support flowin' to the lower 48!
26. I want to make sure that Tom & Paul know how much I appreciate their love & support even though I don't get over much right now 'cuz I've been feeling so crappy. (And I know how much they LOVE living in PA!)
27. Although I am deathly afraid of heights, I'd really like to ride in a hot air balloon!
28. I want to take a trip to Banff.
29. I've always thought about writing a children's book. Maybe I should just give it a try.
30. I want to see a jazz concert @ Lincoln Center.
31. I want to see Mt. Rushmore.
32. I want to read Tuesday's With Morrie because I'm probably the only person on earth who hasn't read it yet.
33. I want to read The Secret Garden, A Tree Grows In Brooklyn, & Jane Eyre to my daughter just like my mother read them to me.
34. I want to go back to LA & do all the tacky touristy crap that I didn't get to do the last 2 times that I went. Oh yes, I WILL buy a star map...
35. I want to swim in the Gulf of Mexico.
36. I want to go to the San Diego Zoo.
37. I want to learn to ride a horse.
38. I want to see San Fransisco.
39. I want to have lunch with this lady, 'cuz she ROCKS!
40. I want Ty Pennington & his crew to come & fix my mom & dad's house even they make me crazy. They deserve it.
41. I want to watch this over & over again because it's freakin' HILARIOUS! I think I've seen it 20 times & it still gets me!
42. I want to take a carriage ride through Central Park & have dinner at Tavern on the Green.
43. I want to eat sushi in Tokyo.
44. I'd like my steroids to wear off so I can got the hell to bed. I'm really rather tired!
Thursday, March 27, 2008
Fighting Colon Cancer with WNEP 16
Check out the Voice with friends fighting Colon Cancer with Joe Snedeker!!!!!
Monday, June 11, 2007
Relay for Life Weekend
This past weekend I devoted part of my Friday and Saturday making people aware of advocacy for the American Cancer Society's Cancer Action Network. I thought the attendance at the Shamokin Relay was a little down, but the Relay received tremendous financially support reaching their goal.
It was actually great to see another Relay in Selinsgrove, PA held at Susquehanna University. I actually got to see Congressman Chris Carney since his debate with Don Sherwood before the November Election.
Becca's Story
In case anyone forgot why we do Relay for Life, here is a good fighter's story. It is the story of Rebecca Babcock, a youthful 20-something, who should be free to enjoy all the aspects of life that come with her education and youth. However, colon cancer has provided her with some roadblocks. Here is the direct link to Becca's Blog.
This past weekend, Becca was in upstate New York preparing to be a model in the 2008 Colondar. A project brought about by Molly McMaster inspired by Erika Kratzer to bring awareness to the masses of young people under 50 years old that suffer from colon cancer.
With the permission of Becca, I have cross-posted some of her blog. Her story gives a tremendous insight of young people who suffer from cancer in general and trying to keep it all in perspective.
Monday, April 30, 2007
Defeated
I think for the most part I've tried to refrain from posting on here when I'm really angry or upset about something.I figure then it'll just sound like me whining. And even though my nickname as a child used to be "Becca-Whiiiiiiiiiiiiiiiiinnnneeerrrrrrr", I really hate whining.When I do it, I hate the sound of it coming out of my mouth. So I've attempted to not come on here and gripe like it's my fourth grade journal.But I'm just in about the foulest mood you could ever imagine right now. There isn't much else to do BUT whine in this instance.Here's the scenario. I don't have health insurance. I had COBRA insurance from my former employer before getting diagnosed. It was crappy crappy coverage, but it was still coverage. However, COBRA ran out in February (coincidently just about when I finished chemotherapy. although that didn't really matter much b/c the COBRA benefits had been maxed out for months prior to that).I cannot NOT have insurance. I need follow up PETscans and Upper Endoscopies pretty much indefinitely. So it was imperative I get insurance. I can't get it through my current employer b/c I am parttime, they are non-profit, etc etc.So I hear about this program through the state of Illinois called ICHIP (Illinois Comprehensive Health Insurance Program). If you're approved, you can get covered, with no pre-existing condition, etc etc.I applied, and got approved. Great news right? All worries solved for now?HA.The premium is $425ish a month. A MONTH?!? I can BARELY make $350 a month for rent, let alone regular utility bills, cell phone bill, and we're not even looking in the direction of my more than $40,000 in student loans. Nor am I even thinking about the way more than $125,000 still remaining in medical/surgical/treatment bills.I just don't get it. I truly just can't see a solution. I do not have this amount of money. I do not have the option for making anywhere near enough at my current job. I am struggling to find a second job, or just a whole new job all together, due to the demands and constraints of this new plumbing system I had installed. I can't seem to be able to work a normal 8 hour shift with regularity. I'm lucky that my current employer is so understanding and flexible and has been there with me through it all already.I don't apparently qualify for Social Security, SSI, Disability, Medicaid, etc. For who knows what reason.I just don't understand. I feel very defeated. Very discouraged.I don't know how people do it. How am I expected to pay this? It'd be one thing if I was just a normally broke fresh out of college kid. But I don't get a fresh start on this. I get to be held back by a year of treatment and surgery, barely able to work, and of course incruing massive debt well beyond even the most well established persons income. (let alone that I was not well established previously)You always hear how a medical crisis just shatters people, not merely emotionally and psychologically, but financially as well. And I know the stories. But it's hard to fathom when it's you in that position. It's hard to dig yourself out of that pit of worry, anxiety, and fear. This wierd obligation I have. I've never imagined the statement "stuck between a rock and a hard place" to ever be so true. though for me it's essentially a life or death kinda true.And well. That's it. I don't even have anything more to say. I barely can muster the energy to be angry. it's just too heavy. I'd rather just sink into a corner and disappear. money, insurance, the health care industry...all be damned.
Posted by Becca at 12:03 PM 5 comments
Wednesday, April 4, 2007
The after effects no one mentions
I know i know i know....i'mma bad bad blogger.I've been on a itty bitty break. Sorta forgot bout writing. No real good reason. Other than maybe, trying to get back to living.It's cool seeing all the comments on here though. Sometimes people comment and I realize I have no way to answer em back. Which is sorta sad.I want you guys all to know I do read every comment and I'm so honored, flattered, touched, surprised, embarrassed, and humbled that anyone even reads what I have to say.It was really cool that I got a comment on my last entry from a nurse that I had at Cleveland Clinic in September for my surgery. It feels awesome that they not only remember me, but actually got online to see how I was doing.And for that...to anyone that I've come across in this mad journey that is cancer...I'm doing well. I think about lots of the nurses and fellows and doctors I've come in contact with often. Believe it or not.I remember one nurse (or nurse aid?) at cleveland clinic who sat in my room when my mom was out doing errands, and talked to me for the longest time about her sister, and their quest to decorate her sisters house by going to every yard sale they could find.And I remember the Radiation Therapist who would buy at least 2 of my "CANCER SUCKS" bracelets every time she saw me (and seeing as I was there mon-fri for five weeks straight...that's alot of bracelets). She single-handedly outfitted almost every person working in radiation and the CT Scan dept.And I remember the Stoma nurse from Cleveland emailing me months after surgery to see how I was doing, and to say how great my stoma looked.And not even just in the medical area. From the first day I told people at work what was going on, the person that runs the cafe in my job decided there wasn't alot he could do to help me, but the one thing he could do was feed me for free the entire time I was in treatment. I didn't even realize til I came back from surgery and having not worked for two months how much of a help this was to me.A friend who I didn't even know for too long, or too well at the time found out what was going on and singlehandedly organized, and executed an amazing classical concert as a fundraiser for me in a city that I had never lived or visited, on a school campus which I never attended, nor had any connection to.And the Radiation Doctor who ended up leaving to a new hospital right on my last day of radiation, but made sure she was the one who saw me on my final day, and then gave me her personal cell phone number in case I had any problems later on.A nurse that my mom works with, but whom I've never met decided her family and her would not give each other presents this christmas, but instead take money they would have bought presents with, and donated it to my fundraising.There were so many people I crossed paths with that made the experience just a bit more bearable, and helped me continue to feel like a person rather than a number or a disease. This teeny tiny blog entry doesn't touch on even half. I wish I could detail out for you all how many amazing things that have happened due to such an awful diagnosis.I felt I needed to take a sec to reflect on some of the more positive notes and all the great people I'm lucky enough to have in my life. Since I'm not in the greatest of moods right now, and my next entry will probably be a wwwwwhhhoooooollllleeee lot more negative.but first...sleep is an order.obrigado gentes
Defeated
I think for the most part I've tried to refrain from posting on here when I'm really angry or upset about something.I figure then it'll just sound like me whining. And even though my nickname as a child used to be "Becca-Whiiiiiiiiiiiiiiiiinnnneeerrrrrrr", I really hate whining.When I do it, I hate the sound of it coming out of my mouth. So I've attempted to not come on here and gripe like it's my fourth grade journal.But I'm just in about the foulest mood you could ever imagine right now. There isn't much else to do BUT whine in this instance.Here's the scenario. I don't have health insurance. I had COBRA insurance from my former employer before getting diagnosed. It was crappy crappy coverage, but it was still coverage. However, COBRA ran out in February (coincidently just about when I finished chemotherapy. although that didn't really matter much b/c the COBRA benefits had been maxed out for months prior to that).I cannot NOT have insurance. I need follow up PETscans and Upper Endoscopies pretty much indefinitely. So it was imperative I get insurance. I can't get it through my current employer b/c I am parttime, they are non-profit, etc etc.So I hear about this program through the state of Illinois called ICHIP (Illinois Comprehensive Health Insurance Program). If you're approved, you can get covered, with no pre-existing condition, etc etc.I applied, and got approved. Great news right? All worries solved for now?HA.The premium is $425ish a month. A MONTH?!? I can BARELY make $350 a month for rent, let alone regular utility bills, cell phone bill, and we're not even looking in the direction of my more than $40,000 in student loans. Nor am I even thinking about the way more than $125,000 still remaining in medical/surgical/treatment bills.I just don't get it. I truly just can't see a solution. I do not have this amount of money. I do not have the option for making anywhere near enough at my current job. I am struggling to find a second job, or just a whole new job all together, due to the demands and constraints of this new plumbing system I had installed. I can't seem to be able to work a normal 8 hour shift with regularity. I'm lucky that my current employer is so understanding and flexible and has been there with me through it all already.I don't apparently qualify for Social Security, SSI, Disability, Medicaid, etc. For who knows what reason.I just don't understand. I feel very defeated. Very discouraged.I don't know how people do it. How am I expected to pay this? It'd be one thing if I was just a normally broke fresh out of college kid. But I don't get a fresh start on this. I get to be held back by a year of treatment and surgery, barely able to work, and of course incruing massive debt well beyond even the most well established persons income. (let alone that I was not well established previously)You always hear how a medical crisis just shatters people, not merely emotionally and psychologically, but financially as well. And I know the stories. But it's hard to fathom when it's you in that position. It's hard to dig yourself out of that pit of worry, anxiety, and fear. This wierd obligation I have. I've never imagined the statement "stuck between a rock and a hard place" to ever be so true. though for me it's essentially a life or death kinda true.And well. That's it. I don't even have anything more to say. I barely can muster the energy to be angry. it's just too heavy. I'd rather just sink into a corner and disappear. money, insurance, the health care industry...all be damned.
Posted by Becca at 12:03 PM 5 comments
Wednesday, April 4, 2007
The after effects no one mentions
I know i know i know....i'mma bad bad blogger.I've been on a itty bitty break. Sorta forgot bout writing. No real good reason. Other than maybe, trying to get back to living.It's cool seeing all the comments on here though. Sometimes people comment and I realize I have no way to answer em back. Which is sorta sad.I want you guys all to know I do read every comment and I'm so honored, flattered, touched, surprised, embarrassed, and humbled that anyone even reads what I have to say.It was really cool that I got a comment on my last entry from a nurse that I had at Cleveland Clinic in September for my surgery. It feels awesome that they not only remember me, but actually got online to see how I was doing.And for that...to anyone that I've come across in this mad journey that is cancer...I'm doing well. I think about lots of the nurses and fellows and doctors I've come in contact with often. Believe it or not.I remember one nurse (or nurse aid?) at cleveland clinic who sat in my room when my mom was out doing errands, and talked to me for the longest time about her sister, and their quest to decorate her sisters house by going to every yard sale they could find.And I remember the Radiation Therapist who would buy at least 2 of my "CANCER SUCKS" bracelets every time she saw me (and seeing as I was there mon-fri for five weeks straight...that's alot of bracelets). She single-handedly outfitted almost every person working in radiation and the CT Scan dept.And I remember the Stoma nurse from Cleveland emailing me months after surgery to see how I was doing, and to say how great my stoma looked.And not even just in the medical area. From the first day I told people at work what was going on, the person that runs the cafe in my job decided there wasn't alot he could do to help me, but the one thing he could do was feed me for free the entire time I was in treatment. I didn't even realize til I came back from surgery and having not worked for two months how much of a help this was to me.A friend who I didn't even know for too long, or too well at the time found out what was going on and singlehandedly organized, and executed an amazing classical concert as a fundraiser for me in a city that I had never lived or visited, on a school campus which I never attended, nor had any connection to.And the Radiation Doctor who ended up leaving to a new hospital right on my last day of radiation, but made sure she was the one who saw me on my final day, and then gave me her personal cell phone number in case I had any problems later on.A nurse that my mom works with, but whom I've never met decided her family and her would not give each other presents this christmas, but instead take money they would have bought presents with, and donated it to my fundraising.There were so many people I crossed paths with that made the experience just a bit more bearable, and helped me continue to feel like a person rather than a number or a disease. This teeny tiny blog entry doesn't touch on even half. I wish I could detail out for you all how many amazing things that have happened due to such an awful diagnosis.I felt I needed to take a sec to reflect on some of the more positive notes and all the great people I'm lucky enough to have in my life. Since I'm not in the greatest of moods right now, and my next entry will probably be a wwwwwhhhoooooollllleeee lot more negative.but first...sleep is an order.obrigado gentes
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